survivingmyboyz

tales from a stay-at-home mom of four boys

Archive for the tag “birthday”

Looking back, two year later

Two years ago tonight, I layed awake in a hospital bed, hooked up to a multitude of wires. The wires were not only to monitor me and my extremely high blood pressure, but also to monitor my baby and his constantly dipping heart rate. I laid there listening for those dips, praying that they would fix themselves, and that my baby would stay strong enough to make it to the morning, when I was to have a csection to bring my baby boy into the world nine weeks ahead of schedule. It was much too early for my baby to come, but the doctors hoped that they’d be able to better care for him on the outside than inside me. I laid in that bed terrified, knowing that we were in for a long journey that I just hoped my baby would be able to survive.

Our stay in the NICU lasted 77 days, but our journey did not end when we came home. My son left the hospital with a feeding tube and we struggled for two months with feeding schedules, reinserting tubes, doctors visits,  pumping, attempting to breast feed, wheezing, and problems with breathing before we found ourselves back in the hospital. We spent another two weeks in the hospital being told to prepare for multiple hospital stays and surgeries. This child’s life had not started the way we had hoped and it was looking like it wasn’t going to get better anytime soon, but as the saying goes, it is always darkest before dawn. We received miracle news the day of surgery that my son had an easily treatable cyst and that the bleak future we had been preparing for was not going to happen. Two days later, we were back home and my son was eating like a champ, no more feeding tube.

That chapter in our lives feels like it was forever ago. When I look at my son now, it is hard to believe that he is the same kid who went through all of this. Aside from how skinny and small he is, no one would ever look at my son and guess that this was the story of his first six months. My son is turning two tomorrow and he has already been practicing for the part of the troublesome two year old. He is into everything, moving furniture, climbing on chairs, figuring out how to open things he shouldn’t, and making messes faster than I can clean them. I’m pretty sure his thinks his job each day is to mess up as much stuff as he can before he gets put to bed each night. He is very good at his job. As much as he loves to be near his mommy, he is very fiercely independent and insists that he do many things on his own and to be treated like his older brothers. He insists on big boy cups and forks. He wants to sit on the potty when his brothers do. He likes to play whatever his brothers play. In his mind, he is already a big boy. When he doesn’t get his way though, watch out, because he has been practicing his terrible two tantrums, complete with laying on the floor, kicking and screaming, and pushing his body about on his back. Luckily for him he has the cutest smile, the sweetest little curls, the prettiest blue eyes, and a contagious laugh that all allow him to get away with acting like a brat or making a giant mess. One look at him and your heart just melts.

Watching my youngest son sleep, cuddled into my bed with his brothers for his last night as a baby, it seems impossible that just two years ago he was my smallest baby. Just two years ago, that 18 pound ball of trouble was my 2lb 12 oz miracle baby. Two years ago, he was struggle to survive this journey, now I’m struggle to keep up. Happy birthday baby boy.

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Happy first birthday: letting go of the NICU

It is St. Patrick’s day and I am sitting here, listening to Celtic lullabies, holding my littlest guy, decked out in his St. Patty’s day onesie, rocking him to sleep, and I am reminded of where I was a year ago today. One year ago, I was sitting in the NICU, holding my littlest guy, kangaroo-care style, and rocking his tiny body, too small for clothes, only a hat with a shamrock sticker on it to show it was St. Patrick’s day. Tonight I am rocking my littlest guy for the thousandth time, but a year ago, I rocked him for one of the first times, after waiting several days to finally be able to hold him.

Less than two weeks ago we celebrated a big milestone for my littlest guy, his first birthday. I was prepared for it to be a bittersweet day, a day of mixed emotions, but it wasn’t. The past week and a half since then has been the emotional part for me.

We had just a small celebration with our three other kids and my parents, which seemed fitting since they were the ones who were really there for us through last year’s ordeal and the ones that really sacrificed for my growing family. My wonderful mother was a Godsend when everything happened so I was glad that she decided to come out to celebrate our accomplishment of making it through that first year. There was no party and very little pomp and circumstance that day. I made a homemade vanilla cake with blueberry filling and blueberry butter cream frosting. I was obsessive about making it as perfect as I could and poured a lot of attention into the cake making processes. It is only now that I realize this obesession with the cake was a way of keeping my mind off where we were a year earlier. I felt like it was some how vital that his cake be perfect, even though he wouldn’t know otherwise, nor would he remember it later in life. He received a few gifts that day, but the main event of the day was a return to the NICU with gifts. I was insistent that it be done on his birthday because I felt the need for some sort of closure. I brought  one and a half dozen cupcakes, the same flavor as his cake, for all the NICU nurses working the different shifts that day. I had also organized and assembled,  with the help of one of my moms groups, care baskets for the parents in the NICU. During my small amount of spare time, during the months leading up to his birthday, I crocheted a dozen Easter bunny hats, like the one I’d made my littlest guy while he was in the NICU.  On his birthday, I delivered all these things back to the place where he had spent the first 77 days of his life. I thought for sure that I’d break down upon entering the NICU again, but it didn’t happen. I got a little teary eyed, especially when I saw one of his first nurses, who cared for him the most during his stay there. Other than that, I didn’t feel the need to escape quickly before I was overcome by emotion. In fact, I didn’t really feel that way at all that day. The days after his birthday, however, were another story.

People talk about having PTSD after time in the NICU and it is very much real. I know I never totally dealt with all of what was going on at the time and instead I pushed things down inside or tried  to brush them off because I didn’t have the time or strength to deal with them. I kind of assumed that it had all gone away with time, but that wasn’t  the case. A lot of these emotions and thoughts are starting to resurface now that we have made it through the first year. My husband keeps telling me not to be sad because our baby is healthy now, but it isn’t about that. I’ve found myself in a not too wonderful place mentally and emotionally the last few days. Some of this is partially due to how other people in my life dealt with (or didn’t deal with) this important milestone in my son’s life, but part of it is just the experience itself and the finality of the fact that this is my last baby and I didnt even carry him to term, hold him when he was born, or get to take him home and enjoy him until he was several months old, and even then there were still several more months of problems before I could let go and just be a a regular mom. On a recent trip to Target, I found myself close to tears while browsing the baby clothes aisle when I came across a pair of tiny little mittens that were identical to the ones they attempted to keep on my son while he was in the NICU. I started to think about him in the NICU with those tiny mittens that were still too big for his even tinier hands, then I began to think of how we will never again own tiny mittens like those because he is our last baby.  I’m sad because I feel like I want to have more babies, but not really, I  just want my time with him back to do again, but this time to do the way I had envisioned it. 

I want a chance to finish my pregnancy, know it is time to deliver him, and for both of us to be ready to meet on the outside world. I want a chance to hold my baby in those first hours, breathe in his wonderful baby smell, and rest with him in my arms after such a big day. I want to chance to buy those outfits that say “baby’s first” St. Patrick’s Day and Easter that I never got to because he was too small to wear them and because he really should have been celebrating these holidays for the first time right now. I want the chance to be a new mom who celebrates and shows off her new baby instead of one who hides away in the sterol world of the NICU, afraid to be happy because my baby might not come home.  I want to let go of and not know the anger I feel over people in my life not understanding or caring about the heaviness that comes with having a baby in the NICU or how monumental that first birthday is after surviving such a year. But most of all, I want to finally come to terms with and feel peace with how my last son came into this world and what he went through during his first year of life, because like my husband constantly reminds me, he is healthy now and that is what is important.

Despite  all these emotions and all the difficulties of my son’s first year, I know that I really wouldn’t change  it. My littlest guy’s first year made my family stronger, more appreciative, and showed us who really loved us enough to be there for us. His first year made my littlest guy stronger too and gave us a glimpse of who he is; a determined, stubborn, fighter, who is small but mighty. I guess that means that I just need to except these mixed emotions, allow myself to feel them, and move past them. Our experience in the NICU will always be a part of us, but it shouldn’t continue to hurt us. I am sure by the time we reach this time next year, our time in the NICU will feel like a life time ago, as I watch my littlest guy run around with his brothers, laughing and yelling, the picture of a healthy two year old.

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