A year ago today, I stood in the Children’s Hospital waiting room, a ball of tension and anxiety, and I cried. I cried tears I’d need to cry for months. These weren’t tears of saddeness though, these were tears of joy, and more importantly, relief. We’d had a rough six months. Despite the sun being on the horizon multiple times, it’s rays never seemed to reach us, but that day, the sun finally shone on my family and my sweet littlest boy.
As I stood in that hospital waiting room, preparing for the worst, I heard the doctor speak the words none of us thought we would hear, “it is just a cyst.” And like that, the sun came out, a miracle was grant, and my baby was spared the horrendous picture of his likely future that the doctors had painted. He was healed. It was a night and day difference, like we’d brought in our broken little baby and they had just handed us a brand new healthy one. The docors and nurses couldn’t even believe that it was the same child. Even harder than comprehending the change from the baby who entered to hospital to the baby who left it is comprehending who this child is today compared with a year ago. On occasion, I look back at pictures and videos of my son from the first five months of his life. It is very hard to look at those pictures, but the videos are even worse. I remember his breathing being loud and him struggling with it, but I guess I had forgotten just how bad it was. These videos remind me of just how far he has come and just how lucky I am that he is now healthy.
This past year has been a year of health for my littlest guy; a year to celebrate. A year ago today he got the all clear from the doctors. Within hours we said goodbye to the feeding tube permanently and he was sucking down bottles faster than I could pump them. It must have been just as amazing to him that he could finally breathe and because of that, he could finally eat and enjoy it. Within a week, he was taking almost all of his milk directly from the breast and within two weeks he had gained almost an entire pound. A month later we got rid of his sleeping wedge and all the equipment for feeding. We began to live normal lives. My littlest guy found his voice (a very loud one), he began eating solid foods, and he had more energy from all the food so he was able to become mobile. Soon he was cruising around the house and into everything he could reach. He was walking just after his first birthday, which he celebrated by eating a giant chunk of cake. Sure there were still reminders of all he’d gone through. There were follow up appointments and multiple shots to prevent RSV, but aside from a nasty stomach bug that hit the whole family, an ear infection, and visit to the ER for a (luckily not broken) finger slammed in the front door, he was healthy and growing.
Today, my littlest guy still isn’t on the charts for weight, but he certainly eats his fair share. He loves peanutbutter crackers and granola bars and helps himself to them whenever he finds the pantry door left open. He begrudgingly drinks his milk from a sippy cup, but prefers a lid-free big-kid cup. The same attitude applies to eating in a high-chair versus a normal chair, even more preferred though is to sit directly on the kitchen table, which is where I often find him. If we would let him, he would happily climb up onto the counter or into the sink after eating to clean his own dishes or even assist us in pressing the buttons on the oven to help us prepare the food. He has just changed and grown so much in the past year that it is unbelievable to think that he was that frail, sick little baby a year ago. It is amazing how much of a difference a year of health can make!